Lambert-Eaton News Forums Forums General Questions and Topics A LEMS virtual happy hour??

  • A LEMS virtual happy hour??

    Posted by Ashley on June 9, 2021 at 7:40 am

    Hey all!

    I know some of the other support groups have virtual “happy hours” where we could all “meet.”

    Would anyone be interested in getting together and having a happy hour of our own?

    I know we are all over the world, so timing might be a little bit tricky but I’m sure we could work it out.

    I am free most evenings after 4 pm (EST), Would this time (or later) work for you all?

    If you’re interested, comment on this post and let me know if that time works for you.

    Ashley replied 4 years, 3 months ago 3 Members · 5 Replies
  • 5 Replies
  • Joanne

    Member
    June 11, 2021 at 9:17 am

    That would be amazing. Being on the west coast I am probably 4 hours ahead of those on the east coast. I can be available!

  • Mark J Cafiso

    Member
    June 11, 2021 at 2:32 pm

    That works for me!

  • Ashley

    Member
    June 14, 2021 at 7:37 am

    Hey

    @joanneevans and @mcafiso ! 🙂

    Thanks for responding! I’m going to wait until the end of the week to see if anyone else wants to join us. Then @pricewooldridge will pick an afternoon that works for us and make sure it works for you also!

    • Mark J Cafiso

      Member
      June 14, 2021 at 11:11 am

      Great, thanks !!

       

  • Mary

    Member
    June 15, 2021 at 3:37 pm

    My sister has LEMS…would this only be for people with the illness or can support folks join?

    If so I would love too. I am an RN too and work 12 hour shifts so it would depend if I could or not on the day.

    Ashley and Price I read everything you guys post. You may not get a response from me but please know you are so great and needed. You are so awesome for doing this all.

     

    Mary

  • Ashley

    Member
    June 16, 2021 at 7:24 am

    Hey @sweepea32 !

    Yes! Caregivers are definitely welcome to join us! 🙂

    If you want to message me a couple of days that will work for you, I will see if everyone else is avail. then as well. I’m thinking end of June or early July.

    @pricewool and I love being here and doing what we can for the LEMS community!

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