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    • #18963
      Todd Fringer
      Participant

      <p style=”text-align: left;”>Hi, my question is for people using 3,4 DAP. Does it work for you every time you take it? I’ve had great success with the max dose 80mlg/day until this week. Three days in a row with no effects, muscles just didn’t work. If this persists I need help. I’m also a incomplete C1 Quadreplegic which complicates movement with A-LEMS.</p>
      <p style=”text-align: left;”>Please share thoughts and experiences with 3,4 DAP.</p>

    • #18967
      Price Wooldridge
      Moderator

      @cowboytodd I’m on Firdapse (amifampridine phosphate), my version of 3,4 Dap. My condition, regardless of continuing use, is variable day to day. I do have flares that seem unexplained at times, but the variability of LEMS is just part of my everyday life. If you feel like you’re slipping into crisis, I hope you will get in touch with your neurologist and medical team for help.

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