LEMS is what I would consider an “Invisible illness.”
Unfortunately, invisible illness patients are often discriminated against due to the fact that “we don’t look sick,” Or we don’t always look sick.
I feel there is a misconception that we are “better” because we may be seen doing activities or trying to enjoy life as much as we can. Often I do “fun” activities with symptoms of LEMS even though I don’t voice those.
I think the general public has a misunderstanding about this and I’ve experienced some negative feedback from others about this.
Have you experienced strangers, friends, or acquaintances speaking about you in a negative light when it concerns your disability?
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