-
Fear of starting IVIG
In my opinion, it is common that people share the “side effects” online far more than the benefits of a treatment. I held my neurologist off for a year before I was willing to start IVIG treatment to get my LEMS under control. 3,4 DAP (at the time I was on the compassionate use program through Jacobus) and Mestinon treated the symptoms of weakness; but they did not (and do not) stop the disease from progressing. When I couldn’t swallow even my meds, and my voice no longer sounded like me because the weakness was affecting my esophagus and throat muscles. My neurologist feared my diaphragm would be next. I finally relented to starting IVIG. It has been a game changer! What has been said about IVIG that you fear the most?
-
0 Replies
Sorry, there were no replies found.
Log in to reply.