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How did you find your neurologist?
How did you find a doctor who had LEMS experience? Did you have to travel far or wait a long time to meet with them?
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2 Replies
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I found several since 2001. But, I found the LEMS clinical trial on google in 2011. Google did not exist when I was first diagnosed. I was diagnosed in 2001, but the local neurologist in my home town was not interested in treating a LEMS patient.
The Doctor in Phoenix at St. Joseph’s Hospital Barrows Brain Institute put me on a clinical trial as their only patient.
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Romy,
You were such a trailblazer!!!! It’s amazing how you did all that work yourself to find treatment- and then shared what you learned with other LEMS patients.
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