Tagged: coping with lems, LEMS diagnosis, lems medications, life with lambert eaton, medications to avoid, treatment
- This topic has 1 reply, 1 voice, and was last updated 3 months, 3 weeks ago by
LUCIA.
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February 4, 2022 at 7:39 am #19528
Good morning all!
I believe I’ve posted this before, but I wanted to re-post the list of medications we should avoid or use caution with so it would be easier to find.
You can find it here.
This list is from the Myasthenia Gravis Foundation of America and is pretty recent.
If you’ve personally had a medication that you believe worsened your LEMS, you can feel free to comment here with the medication and your reaction.
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April 12, 2022 at 2:47 pm #19813
Hi all, listed below is an NIH url with drugs to avoid
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7457047/table/T1/?report=objectonly
hope helpful. Deborah Carpenter
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November 30, 2022 at 1:47 am #20443
Muchas gracias por la lista de medicamentos que interfieren o son negativos para crisis o brotes del eaton lambert. La verdad es que me encuentro muchas veces sometida a este tipo de medicamentos por los efectos secundarios que provoca el mismo sindrome autoinmune fisica y psÃquicamente y que son bastante interferientes, pero no me los pueden eliminar con lo que el estado general anda sosteniendote asà asà de milagro, pero quizás si ocasionen alguna crisis mas o menos importante de la enfermedad.
Creo que un ajuste de todo y en pocas dosis pueda lograr ese equilibrio que tanto necesitamos.Thank you very much for the list of medications that interfere or are negative for eaton lambert crises or outbreaks. The truth is that I often find myself subjected to this type of medication due to the side effects caused by the same autoimmune syndrome physically and mentally and which are quite interfering, but they cannot eliminate them with what the general state is holding you like this. miracle, but perhaps if they cause a more or less important crisis of the disease.
I believe that an adjustment of everything and in a few doses can achieve that balance that we need so much.
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