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  • Our next LEMS zoom meeting!

    Posted by Ashley on November 29, 2022 at 7:29 am

    Good morning all! 

    I just wanted to send a quick reminder that our next zoom meeting will be next Tuesday, December 6th at 5 pm EST.

    At this time, we’ve decided to keep the discussion open for whatever topics you wish to talk about.

    If you have something particular you want to talk about, please let us know in the comments!

    Looking forward to seeing you in person next week!

    DCarpenter replied 1 year, 6 months ago 6 Members · 9 Replies
  • 9 Replies

    November 29, 2022 at 10:33 am

    Hola, que significa 6 diciembre a las 5 pm EST. Es hora en américa, meridiano grenwchich, hora inglesa, europea, de qué zona por favor?
    Me gustaria poder apuntarme pero por favor, si alguien me dice en España que hora és?”

    Hello, which means December 6 at 5 pm EST. It’s time in America, Greenwich meridian, English, European time, what zone please?
    I would like to be able to sign up but please, if someone tells me in Spain what time is it?
    Thank you,

  • Price Wooldridge

    November 29, 2022 at 10:39 am

    Lucia, we always post times here in American Eastern Time. We are currently on Eastern Standard Time. In Spain you are 6 hours ahead of this time.
    5 PM Eastern Standard Time is 11 PM in Spain.
    We will be speaking English, but do occasionally have a guest who speaks Spanish.

    Lucía, siempre publicamos las horas aquí en la hora del este de Estados Unidos. Actualmente estamos en el horario estándar del este. En España estás 6 horas adelantado a esta hora.
    17:00 Hora estándar del Este son las 23:00 en España.
    Hablaremos inglés, pero ocasionalmente tenemos un invitado que habla español.

  • DCarpenter

    November 29, 2022 at 3:10 pm

    I would like to discuss Firdapse vs Ruzurgi especially from those who have been on both

    thanks Deborah

    • Price Wooldridge

      November 30, 2022 at 9:12 am

      That sounds like a good topic! I’ll also check with Catalyst Pharmaceuticals about their progress in beginning the manufacture of Rizurgi which has been in the works.

      I do know one patient who has done both and will seek out her response to your question and bring it to the meeting.

      • Tracy

        December 6, 2022 at 8:11 am

        I have done both also

  • DCarpenter

    November 29, 2022 at 3:12 pm

    Also does anyone know a neurologist in the Charlotte NC area?

  • Tracy

    December 6, 2022 at 8:13 am

    I need link for zoom meeting please

    • Kevin Schaefer

      December 6, 2022 at 8:23 am

      Hi Tracy, I just posted it.

      • Dale Volz

        December 6, 2022 at 3:35 pm

        Posted where?

  • DCarpenter

    December 6, 2022 at 3:57 pm

    Can you please specify todays link?


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