The LEMS Voice!
Yes, I get the ‘LEMS voice.’ Do you? Are you aware of the LEMS voice?
Before my Lambert-Eaton diagnosis, at times I noticed my voice sounds were weak, rough, and reedy sounding. I blew it off, thinking I hadn’t been using my voice much that day, and it just needed more use.
After diagnosis, I was at a meeting of LEMS patients and sat next to a gentleman LEMS patient. I overheard him speaking, and his voice sounded like mine. That struck me, so I asked him about it. He called it his ‘LEMS voice.’
That was it! The realization of my speech problems now made sense. All along I had been experiencing changes in my vocal cords associated with LEMS muscle weakness but didn’t make the connection. Now I had, and I always refer to that strident, reedy speech as my ‘LEMS voice.’
I now consider my LEMS voice as a symptom and signal when my LEMS is affecting me more. It comes and goes without rhyme or reason, or sometimes it comes because I missed a Firdapse dose or two, or I’m having a LEMS flare.
Do you hear the ‘LEMS voice’ in your speech? Let me know!
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