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December 16, 2019 at 12:50 pm #14503Kevin SchaeferKeymaster
Hi everyone! My name is Kevin Schaefer, and I’m the Forums Director for this site’s parent company. Dawn DeBois is the head moderator for this forum, and she will be joined by Ashley Gregory in January.
For those of you who have visited, registered and contributed to topics on the new Lambert-Eaton News forums, thank you! As a member of this online community, you are helping to create a platform that unites patients, caregivers, friends, family members, advocates, researchers, and medical professionals who strive to raise awareness for LEMS.
If you aren’t aware of this new initiative, please take a look around the different forums here. Registration is free — just create a profile. You can then read and contribute to a variety of different topics that might impact someone living with LEMS, or someone caring for a loved one with this disease.
For members who have joined, it would be wonderful to hear your thoughts. Below are some suggestions to help you navigate the forum, and what to do once you have registered and created a profile.
Join a Forum:
There are some forums that are targeted to specific roles, such as separate forums for patients and caregivers/spouses. There are also forums that welcome anyone in the LEMS community, regardless of role, location or age. The forums will continue to evolve as members suggest new ideas each day.
Contribute To a Topic or Start Your Own!:
Within each forum are topics and discussions that involve both members and the moderators. These topics can be about anything that’s on your mind, from something you’re questioning to something you’re seeking advice about. They can also be posted to connect with others who might be in a similar stage of the illness as you are, such as seeking treatment or having just been diagnosed. There is no topic too large or small for the forums.
Privately or Publicly Message Another Member:
This feature is similar to other social media platforms where you can reach out to someone publicly (similar to a Facebook post) or privately (direct message). Perhaps a member contributed to a topic or started a discussion that really resonated with you, and you would like to learn more. You can private message them to connect directly about what they’ve shared. You can also use this feature to connect with moderators, and to ask them questions. Suggestions for discussion topics are welcome.
Add a Friend:
Members have shared where they reside, in hopes that local networking can take place. Regardless of geographical proximity, some members will form more natural relationships. The “add a friend” feature offers a way for those people to keep in touch easily and more frequently. This is similar to having friends on Facebook, as they will see updates and posts that you have made. It’s wonderful to see new friendships beginning to form.
We look forward to having you join us!
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