What was your first treatment plan with LEMS?
When I was first diagnosed with LEMS, my initial treatment was 1 gram of Solumedrol infused over 5 days. It was a very scary experience because it actually caused my LEMS symptoms to worsen, along with all of the side effects that happen with high dose steroids. I found out later that indeed, myasthenia symptoms can worsen on high dose steroids. I was completely unprepared. How about you? What was your first line of treatment?
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