Brian Herres
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Sorry i cant answer directly. Restricted for some reason. Cannabis can help heal and protect the nervous system. Google Google Google! Lots of info available but alot is buried. Research!!! It saved my butt! Unfortunately its a life long commitment. If i stop i go down hill quickly. Its not a miracle and works in small steps but it can work! I coached Jennifer Jeanne Kim and she has surpassed me! She couldnt walk hardly at all and now shes over 10,000 steps a day!
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Hello Caro
Im American but i live in Germany and like Argentina medical cannabis is legal! It is all ive been using for almost 3 yrs.! I cannot take Firdapse or 3.4 Dap due to it giving me convulsions. Also bad reaction to IVIG so i decided to try it and so far so good. I still have flares and minor problems but ive been back to work as a service engineer for machines for over 2 yrs. I fly alot walk alot. Im probably 70% of my former self but ill be 58 yrs. Old so i quess im doing good! I think we have talked before on Facebook. Its difficult but its possible. If you need any advice feel free to ask. Good luck Brian Herres
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LA Confidential, Monte Video Spotlight – Purple Dog. Hoof. Sourdough. To name a few that work for me. Jennifer Jeanne Kim might be able to help better in the States strain wise!
I coached her and she’s doing really good too!!! She went from being carried around to walking over 18000 steps last week on her vacation to Hawaii!!!!!
3 yrs. Coming May using just Cannabis and im still doing ok for the most part. Considering where I was im doing great!!! Still battling flares but don’t we all?
Still working full time and getting ready for a 3 week working trip to Rumania. Service work on 8 machines and moving 2 so busy and partly really hard work. Lots of walking too.
How it’s used is as important as the strain.
Take care Brian
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47 Mercury Coupe – driver but always little improvements to make 350/350. 1940 International Pick Up – Hot Rod for my Uncle. Currently 1938 Chrysler Imperial business coupe- 440/727 hobby dragster. 1948 Mercury convertible in the pipeline. In Germany 66 E Typ Jag convertible basically done and restoring a 67 split window VW camping bus I bought in the States and sent to Germany.
I cant take Firdapse – seizures and bad reactions to IVIG. So I’m using medical cannabis! 2 1/2 years now 👍🏻 still losing some strength though. 57 yrs. Old so somewhat normal I quess.
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I build Hot rods on my 4 week vacation at home in Indiana. Also restore cars in Germany in my spare time.
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Hi Tim
I can’t take Firdapse either and also reacted badly to IVIG.
Ive been using medical cannabis for almost 2 yrs. Now solely to treat my LEMS.
Oils and edibles didnt work well but i get really good results with a Vaporizer!
I only use it before bed (every night) or sometimes naps if necessary.
For me it was a huge game changer.
Im 56
Take care and let me know if you need coaching.
Also join the groups in facebook for support 👍🏻
Take care Brian
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I was on it for 3 weeks. Ice cold hands, brain fog, cold nose. It did help my nervous system in the beginning but the 4 1/2 hour seizure and a trip to the hospital put an end to it! Now just using medical cannabis.
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Hi Carol
I use a relatively high dosage right before bed. I use earplugs and a eye mask to isolate myself so i can concentrate (no music or tv). I always have a bottle of water next to the bed ;). I use a special pillow under my knees and i always start on my back for the 1st wave . When it ebbs i turn to my left side for the 2nd wave right side for the last wave then a potty break lol and then sleep. Autosuggestion helps me and i have a few different phrases that i use. There is a technique i learned from a healer that i use to strengthen my system at the beginning when i lay down. I use upward strokes with my fingers (both hands) from groin to breast and breath in going up then exhale repeat about 10 times (never down stroke as that relaxes your system). I try to do breathing exercises in all 3 positions – very deep rythmic breathing slowly and full exhales but still in a relaxed way. If you hear a tone or high frequency concentrate on it. The only way to explain what happens to me with the body high is that i get high charged muscle spasms all over in my body. Its like one of those electrical muscle workout thingys that make the muscles jump or twitch. The strain is also very important. Ive found some that work great some soso and some not at all even though it had a high THC %. I think the terpene profile is probably more important. Ive tried pretty much everything from pipes, joints, spliffs, vaporisers, bongs, full extract oil, brownies and so on and i think that a ice bong works the best and for non smokers a vaporiser. Coughing fits suck but can be of benefit expecially for smokers because of the natural expectorant in cannabis you should cough up phlem and have fairly clear lungs to sleep (ive been smoking for 41 years and have never slept so good). My COPD has also all but disappeared (my lung Doctor is anti cannabis and is upset because im doing so well LOL). Cannabis is also not a miracle medicine and has to be used everyday to work and it works slowly. It took me about 3 months to really get back on my feet although i did notice the small improvements daily. There is alot more that i could add (probably a books worth) but ill stop here. Yes i still have problems and flares but all in all im a very lucky man to be doing so good compared to the prognosis in the hospital. Good luck on your journey. Take care 🙂 Brian
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Hi Debbie
I know exactly what your going through.
I cant take Firdapse or IVIG and my outlook was really bleak.
After some studying i decided to try Cannabis (i found some info that it might help with Myasthenia Gravis as well as MS and ALS).
1. It got me into a positive state of mind and i decided to fight back.
2. I can sleep ok now after so many sleepless worrying nights and a very bleak outlook on life.
3. My COPD has almost completely disapeared (Deep inhalations from a bong can increase lung volume, Cannabis is a natural expectorant, and i do breathing exercises when im high which helps the lungs and the nervous system).
4. Im back to work (was off sick for 8 months) as a Service Engineer and have absolved 3 trips to Spain, 3 trips to Hungary, 2 trips to Rumania, a trip to Austria ( all business trips) and a trip to the States for vacation with minimal problems this year. Im a US citizen living in Germany.
5. PET scan is the best thing you can do to check your body for cancer! CT is good PET is better.
I developed my own system as to how i use the medical cannabis to help heal my nervous system. Its been a wild ride but im doing pretty good considering the only thing im using to combat my LEMS is cannabis and my own mind.
Cannabis is not a wonder drug that will help you to heal yourself overnight. It works in very small increments and has to used daily to work. I recommend Sativa for daytime (not as loopy and helps protect the nervous system and cells. Indica before naps or bedtime.
If anybody needs help im here.
Jennifer Jeanne Kim can also help as i helped her ( she is active in the FB groups).
Your not alone!
Best wishes Brian
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Withings Scanwatch. Expecially good for tracking my puls at night while i sleep (training mode). Im a heart patient as well and have had problems from LEMS??? with Afib.
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Hi
Ive been soley using Medical Cannabis here in Germany to treat my LEMS for about a year and a half now!
I had Seizures from Firdapse and also reacted badly to IVIG.
My insurance pays for it and im doing pretty good 🙂
Ive been pretty open about it in our Facebook groups.
Certain types of cannabis are really good at treating alot of autoimmune diseases.
If your at wits end and nothing is working its worth a try.
I use a Sativa sparingly in the daytime and Indica before naps and bed time.
It was a slow process to heal and it took me about 3 months of daily – nightly use to get up to a relative healthy level and yes i get flares but nothing severe or long lasting.
take care Sincerely Brian
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The right strain with the right dosis works great. Ive tried several different strains as this is kind of a expirmental treatment and have found 2 strains that work!
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In Germany i contacted my insurance company which sent me forms for my Doctor to fill out and i sent them all of my medical records. They made a one off decision to approve it as there are no studies for LEMS but i had been using it for about 3 months at the time and showed significant improvement all documented by my doctors. It was a simple process.
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Yes no studies as of yet and that was a big hurdle for me with my insurance company. It works great for me and has given me a huge boost in my quality of life Physically and emotionally! Plenty of info online about acytlcholine inhibitors and so forth online also good info regarding cannabis and treatment for ALS and MS!