Palliative Care for LEMS

Palliative Care for LEMS
0
(0)

Lambert-Eaton myasthenic syndrome can lead to a number of debilitating symptoms. The condition is often accompanied by small cell lung cancer. If you have LEMS, palliative care may be able to help reduce your symptoms and improve your overall quality of life while undergoing treatment.

What is palliative care?

Palliative care focuses on alleviating symptoms as well as increasing the quality of life for those with a serious illness like LEMS. The care team works with the patient and their regular doctors to make sure the patient’s treatment desires are being honored. They also provide support for the patient and family members to help decrease stress and ensure needs are being met.

Palliative care can be provided at any stage after diagnosis and while the patient is still receiving treatment. The patient can receive palliative care at a number of different locations, including nursing homes, hospitals, and outpatient clinics, or at home.

Who makes up a palliative care team?

A palliative care team is usually a multidisciplinary team made up of a number of different medical professionals and support personnel. Specialized doctors and nurses will help to make sure the patient’s symptoms are under control. The team may also include chaplains, nutritionists, social workers, and therapists to help improve the patient’s quality of life.

Why might I need palliative care if I have LEMS?

LEMS can lead to muscle weakness as well as a number of autonomic nervous system symptoms, which can decrease quality of life. Palliative care can help control and potentially reduce your symptoms and improve your well-being, especially if you are also undergoing cancer treatments, which lead to many symptoms on their own.

How can palliative care help me?

Palliative care can provide you and your family with a number of different services. These include symptom management, help with deciding on your treatment and future plans in line with your goals, and psycho-social support.

Controlling symptoms

Muscle weakness is one of the primary symptoms of LEMS. A palliative care team may treat you with 3,4-diaminopyridine (DAP) to help you with weakness and potentially reduce some symptoms of autonomic dysfunction such as dry mouth or erectile dysfunction.

The palliative care team may also help with other symptoms such as dyspnea (trouble breathing), pain, fatigue, nausea, constipation, loss of appetite, and sleeping difficulties, which can all occur due to autonomic dysfunction or be caused by LEMS or cancer treatments.

Matching treatment to goals

The care team can help you understand your treatment options and their financial implications. They can also help you figure out your goals so as to make better decisions about your treatment. Finally, they can work with the rest of your medical team to ensure that your wishes are honored.

Providing psycho-social support

Treatment of severe diseases like LEMS can put a lot of stress and anxiety on a patient and their family. The care team can help you and your family deal with any negative emotions you may be having. They can also assist with setting up activities to increase your well-being, such as a book clubs or outings to events.

 

Last updated: Jan. 11, 2021

***

Lambert-Eaton News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Brian holds a Ph.D. in Biomedical Engineering from Case Western Reserve University and a Bachelors of Science in Biomedical Engineering from Georgia Institute of Technology. He has co-authored numerous scientific articles based on his previous research in the field of brain-computer interfaces and functional electrical stimulation. He is also passionate about making scientific advances easily accessible to the public.
Total Posts: 0
Özge has a MSc. in Molecular Genetics from the University of Leicester and a PhD in Developmental Biology from Queen Mary University of London. She worked as a Post-doctoral Research Associate at the University of Leicester for six years in the field of Behavioural Neurology before moving into science communication. She worked as the Research Communication Officer at a London based charity for almost two years.
×
Brian holds a Ph.D. in Biomedical Engineering from Case Western Reserve University and a Bachelors of Science in Biomedical Engineering from Georgia Institute of Technology. He has co-authored numerous scientific articles based on his previous research in the field of brain-computer interfaces and functional electrical stimulation. He is also passionate about making scientific advances easily accessible to the public.
Latest Posts
  • palliative care
  • Ruzurgi for LEMS
  • firdapse
  • IVIG Infusions

How useful was this post?

Click on a star to rate it!

Average rating 0 / 5. Vote count: 0

No votes so far! Be the first to rate this post.

As you found this post useful...

Follow us on social media!

We are sorry that this post was not useful for you!

Let us improve this post!

Tell us how we can improve this post?