Benefiting From Advances in Modern Medicine
This year has gotten off to a rocky start in our family. It began with a call on Jan. 3 informing us that my father had a heart attack. He had just returned home…
Stretcher-Bearers — Lori Dunham
Lori Dunham and her family have lived all over the world thanks to the U.S. Navy. She has a degree in human resources but enjoys writing to encourage and inspire others. When her daughter Grace was diagnosed with Lambert-Eaton myasthenic syndrome at age 15, Lori sought community and encouragement from those walking a similar path. Lori’s mission in writing is to inspire and encourage those who find themselves in the role of caregiver. When she is not writing or homeschooling her two youngest, Lori enjoys reading, baking, and spending time with family. Currently they live in Jacksonville, Florida.
Featured Post
How a simple tendon reflex test indicated a major problem
No two stories are quite the same — particularly among those living with Lambert-Eaton myasthenic syndrome (LEMS). When our daughter Grace was diagnosed with the condition at age 15, I was desperate to…
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Treating Our Daughter’s COVID-19 With Sotrovimab
Given the most recent COVID-19 surge, it seems that many people are resigned to getting sick with the new coronavirus variant, omicron. I pushed hard against this idea because our daughter Grace, 16, has…
Weighing the Pros and Cons of Special Diets for Autoimmune Disease
One of the first things I learned about after finding out our daughter Grace has a rare autoimmune disease were the various diets that target autoimmune issues. Many of these diets claim to…
Realigning My Perspective to the Important Things in Life
Social media comes with a lot of pros and cons. One of the positive aspects of Facebook, in my opinion, is the memories feature that sporadically pops up. I love it when long forgotten…
As the New Year Begins, Let’s All Seek Out Our Support Networks
Not long ago, my family traveled to San Francisco to visit our son and his new wife. It was our first chance to travel since our daughter Grace was diagnosed…
A Word From One of the Younger LEMS Patients
It has been just over a year since I began writing this column, “Stretcher-Bearers.” What a blessing it has been to become a part of this community and to be able to…
Finding Hope During the Most Wonderful Time of Year
As we enter what I consider to be the most wonderful time of the year, I reflect on why this season of giving is so magical. Does it really have anything to do…
I Appreciate Resources That Enable Me to Learn About Rare Disease
I have come to appreciate the act of learning late in life. Until recently, I had taken for granted the ability to go to school, learn, and be educated in the field of my…
Seeking a Good Night’s Sleep With an Autoimmune Disease
It’s often true that we never really know how much we treasure something until we no longer have it. We can also tend to take things for granted in life by never truly appreciating…
Tackling Common Misconceptions About People With Chronic Illness
“I don’t want my pain and struggle to make me a victim. I want my battle to make me someone else’s hero.” — Unknown I never gave much thought to those living with…
Finding the Rare Blessings Among the Hard Days
“All we have to decide is what to do with the time that is given us.” — J.R.R. Tolkien The most wonderful time of the year is almost upon us.
Weighing the Pros and Cons of Taking Another Immunosuppressant
We live only two hours from “The Happiest Place on Earth,” so it’s no surprise that we used to frequent Disney World. Each year, my children would push me to ride bigger and…