• Popular Discussions
•  Dawn DeBois

  FIRDAPSE side effects: Does everyone experience them?

  Julie replied 3 months, 3 weeks ago 20 Members · 60 Replies

  Firdapse and Ruzurgi (Amifampridine)
•  Ashley

  LEMS zoom meetings are returning!

  Price Wooldridge replied 2 years, 11 months ago 13 Members · 34 Replies

  LEMS Community Zoom Socials
•  Ashley

  We want to hear about your experience with the COVID Vaccine!

  Price Wooldridge replied 3 years, 7 months ago 10 Members · 32 Replies

  COVID-19 and LEMS
•  Ashley

  Seronegative LEMS

  Price Wooldridge replied 2 years, 2 months ago 10 Members · 32 Replies

  Diagnosed: What now?
•  Price Wooldridge

  How Long To Get Your LEMS Diagnosis?

  Price Wooldridge replied 3 years, 5 months ago 9 Members · 29 Replies

  General Questions and Topics
•  Dawn DeBois

  Please Allow Me to Introduce Myself…

  Ashley replied 4 years, 11 months ago 6 Members · 28 Replies

  Introductions
•  Ashley

  What age were you diagnosed with LEMS?

  Raine replied 3 months ago 12 Members · 28 Replies

  Diagnosed: What now?
•  Ashley

  LEMS and Immunosuppression

  Price Wooldridge replied 3 years, 8 months ago 8 Members · 27 Replies

  Immunosuppression
•  Ashley

  Where is everyone from?

  Ashley replied 5 years, 2 months ago 15 Members · 26 Replies

  Introductions
•  Ashley

  Homeopathic Remedies

  Ashley replied 5 years, 5 months ago 5 Members · 24 Replies

  Diagnosed: What now?
•  Ashley

  What age were you diagnosed with LEMS?

  Tina Sadler replied 3 years, 8 months ago 9 Members · 21 Replies

  General Questions and Topics
•  Ashley

  Working with LEMS

  alex kahn replied 4 years, 3 months ago 7 Members · 21 Replies

  Diagnosed: What now?
•  Price Wooldridge

  Would you switch to taking 100 mg daily of Firdapse?

  Wanda Grischkowsky replied 2 years, 2 months ago 9 Members · 21 Replies

  Firdapse and Ruzurgi (Amifampridine)
•  Ashley

  Introductions

  Tescha replied 5 years, 3 months ago 5 Members · 18 Replies

  Introductions
•  Price Wooldridge

  My First Port Placement

  Price Wooldridge replied 5 years, 4 months ago 4 Members · 18 Replies

  IVIG and Plasmapheresis
•  Ashley

  What year where you diagnosed with LEMS?

  Ginny replied 3 years, 8 months ago 12 Members · 18 Replies

  General Questions and Topics
•  geost

  Symptoms

  Wanda Grischkowsky replied 3 months ago 7 Members · 18 Replies

  General Questions and Topics
•  Dawn DeBois

  IVIg- What did it do for your LEMS symptoms?

  Dawn DeBois replied 5 years, 5 months ago 6 Members · 17 Replies

  IVIG and Plasmapheresis
•  Ashley

  Roll call!

  Price Wooldridge replied 3 years, 7 months ago 10 Members · 16 Replies

  Introductions
•  Ashley

  LEMS Zoom Social Dates for 2024!

  Ashley replied 1 year ago 6 Members · 16 Replies

  LEMS Community Zoom Socials
•  Price Wooldridge

  Immunoglobulin Titan Games: Sub Q vs IVIG!

  Dawn DeBois replied 4 years, 9 months ago 6 Members · 15 Replies

  IVIG and Plasmapheresis
•  Ashley

  Who diagnosed you with LEMS and who currently treats your LEMS?

  Dawn DeBois replied 4 years, 9 months ago 6 Members · 15 Replies

  Diagnosed: What now?
•  Price Wooldridge

  The Efficacy of Firdapse, 3,4-diaminopyridine or 3,4-DAP, In Treating LEMS

  Price Wooldridge replied 3 years, 8 months ago 4 Members · 15 Replies

  Firdapse and Ruzurgi (Amifampridine)
•  Ashley

  Transitioning from IVIG to Rituxan

  Morgan replied 3 years, 2 months ago 4 Members · 15 Replies

  IVIG and Plasmapheresis