Deborah Carpenter
Forum Replies Created
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I am trying to access the Zoom…what is the password or code? Deborah Carpenter
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Deborah Carpenter
MemberJanuary 9, 2024 at 5:32 pm in reply to: What do you have in store for the New Year?More focused exercise, investigate Subcutaneous IVIG as an option, and plan a US trip as a test for more ambitious travel!
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Yes time is good for me and thank you for your leadership and list of dates for 2024 for planning.
Deborah
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Deborah Carpenter
MemberOctober 20, 2023 at 3:44 pm in reply to: Cant decide if I should get Covid19 vaccineI was told ok to get COVID vaccine but 2 weeks after IVIG and 2 weeks before IVIG, so as not to interact. I took 2nd COVID vaccine with days of IVIG and had a horrible reaction–conjunctivitis, muscle pain, full body rash, GI symptoms, body aches.
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BTW, Vern Juel, MD one of the authors is my current neurologist at Duke.
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I have double vision occasionally, the neuro ophthalmologist told me that some of his LEMS patients have this symptom routinely. Mine occurs mostly in the morning.
I am not certain I was tested for the antibodies that you mention, the neurologist at Johns Hopkins tested me initially with a “panel of LEMS” indicators, which may have included it, said results “were off the charts”.
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Yes, esp. on lips, seemingly for no apparent reason. I use Burts Bee Rapid Rescue OTC.
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Deborah Carpenter
MemberAugust 3, 2023 at 8:30 am in reply to: A time for everything, including goodbyesDear Price, thank you for your leadership and coaching efforts, which have been greatly appreciated and helpful. Best wishes
Deborah
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Deborah Carpenter
MemberAugust 15, 2023 at 10:41 pm in reply to: Ashley and Price Want to Meet You!Look forward to seeing you on zoom August 25, 2023 at 2 pm
best Deborah