Mark J Cafiso
Forum Replies Created
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Mark J Cafiso
MemberOctober 29, 2021 at 3:43 pm in reply to: Is Hip Weakness the Big Barometer of Your LEMS Status?Definitely the hip/leg weakness. If I’m active at all one day, the next day I know will be difficult. I recently was on vacation, and only planned activities that required any walking every other day.
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I’d like to meet you, as well!
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Good luck! Take care!
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Hi Price, my shoulder weakness is exactly the same and my diagnosing neurologist’s response was the same. Sorry you’re having it ongoing. Mine is sporadic, but when I do have it, its severe pain just trying to raise my arm from the shoulder.
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That works for me!
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Mark J Cafiso
MemberApril 20, 2021 at 3:59 pm in reply to: What topics would you like to see more of?I was diagnosed in April 2018. For the most part, I’ve just had the typical leg weakness, severe constipation, fatigue.
In the past month or so, I’ve started having the arm/shoulder weakness along with severe pain in my shoulders.
I’ve also had elevated heart rate w/ 2 trips to the ER, random chest pain, ear pain, and the last couple days, foot pain where I can hardly walk.
I guess I’d like to hear if other are having similar symptoms, or are these random pains unrelated to LEMS.
Thanks!!
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Great, thanks !!
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Mark J Cafiso
MemberApril 21, 2021 at 7:06 am in reply to: What topics would you like to see more of?Thank you for you reply, Price. I see my neurologist soon, hopefully, he’ll have some insights! Take care!